Sep 15 2014
I’ll be honest: I used to generally try to avoid kids with special needs if I could. Aside from the awkwardness of not knowing how to react or interact, I also failed to understand how families of kids with severe disabilities stayed sane. Feeding, dressing, washing, and changing older kids’ diapers was not my idea of a good time, and I didn’t know how they did it.
Then I had a kid of my own. We didn’t realize it when Moishy was born, but during routine testing when he was 3 months old, they told us that his head was not growing, among other issues, and further testing was necessary. This news sent us on a crazy whirlwind of doctors, hospitals, cat scans, x-rays, and more. Eventually the diagnosis was clear: Our beautiful boy had cerebral palsy and microcephaly.
I looked myself in the mirror and realized that I had to change. Now I had my very own child with special needs. Avoidance was no longer an option. Read the rest of this entry →
Apr 17 2014
This year, at our first night’s seder, my 11-year-old daughter declared her desire to find the afikomen. You see, she informed me, this would be her only chance.
Puzzled, I asked why. After all, we were heading to a friend’s home for the second night, and there would most certainly be an afikomen hunt there, as well.
(Back story: The friends we celebrate Passover with have one son, Josh, who has Cerebral Palsy. I have written about him and my children’s relationship with him before. Our families have been celebrating second seder together for the past few years.) Read the rest of this entry →
Feb 27 2013
As part of our month-long series dedicated to Jewish Disability Awareness Month, Jason shares what it’s like to be a parent with a disability.
Every morning I say two prayers. It isn’t normal for someone in my position to recite either one, but I’ve never been described as normal.
The first, traditionally said by addicts, is the Serenity Prayer: “God grant me the serenity to accept the things I cannot change, the courage to change the things I can and the wisdom to know the difference.” The second, traditionally said only by women as part of the Jewish morning prayers, is, “Blessed are you Hashem, our God, king of the universe for having made me according to his will.” Together these prayers remind me–a person with cerebral palsy–to be proud of who I am, while accepting, but not diminishing, my challenges. Read the rest of this entry →