Lauren Weinstein and her husband were expecting their first child when they learned that they are both carriers of a gene that causes cystic fibrosis (CF), one of the 19 common genetic diseases found among Ashkenazi Jews. The prognosis for a child with CF is pretty grim, and Lauren underwent DNA testing to learn if their child would have the disease. Then she managed to write a touching and darkly funny comic called “Carriers” about the period of waiting for those test results, published in Nautilus. She agreed to talk with me about her experience.
1. What was the your initial response when you were told that there was a good chance your child would have CF? Were you scouring the internet?
I have never been a fan of researching any medical issue on the internet. Obviously, it is a writhing pit of misinformation, none of which may pertain to your specific problem, especially when it’s about something as serious as CF. I waited until I met the genetic counselor and the pediatrician. And the picture the pediatrician painted was pretty bleak, unfortunately. Read the rest of this entry →