A confession: I mock social media publicly. I loudly echo the sentiments expressed by so many — that social media is changing the way we interact with each other; that it can cause depression and…anxiety; that we all need to step away from the lure of Facebook. But, privately, I love it. I secretly enjoy looking at the pictures of my friends’ children. I don’t mind learning about big life events — engagements, births, and more — via alerts on my smartphone. I love reading the articles apparently chosen… >> Read More
It seems Gerber has stirred up some controversy. This week, the pureed food purveyors appointed its first-ever "spokesbaby" with Down syndrome.
For some, this is a move toward greater inclusion;…for others, it seems like just a tokenizing PR move. Lucas Warren, an 18-month-old from Dalton, Georgia, won the company's Gerber baby contest yesterday — a contest his parents entered him into. Bill Partyka, CEO and president of Gerber, told Today that Lucas is "the perfect fit," adding that the company chooses "the baby who best exemplifies Gerber's longstanding… >> Read More
When it comes to deciding what to wear, we often choose things that fit into our aesthetic and make us feel good about ourselves. When you have a disability, however, clothing options can be limiting…— you may be forced to choose function over style (because, for instance, you may not be able to wear clothes with zippers), so your favorite pair of jeans? They may be off the list. This is why fashion designer Mindy Scheier set out to make fashion more inclusive. Scheier paired up with Tommy Hilfiger and… >> Read More
For my 7-year-old daughter, the December holidays — with all its bells and lights and shiny décor and, especially travel plans — are a dream come true, but also a nightmare.
Maggie has Rett…Syndrome and sensory processing disorder. At two and a half, music playing in the background seemed like it burned her ears. If we walked into a store, restaurant, or anywhere music was playing, she would scream. At 3, walking into a room with too much clutter would impede her ability to walk. At 4, crowds… >> Read More
It ended with an email that read: “On your 61st birthday, you will have completed your commitment as a member of the Be The Match Registry®.”
After 23 years, I have aged out. My bone marrow…is now too old to save a life. And not just any life. I am too old to save a very particular life. She was 6 years old, suffering from aplastic anemia, when I signed on with the bone marrow donor registry in 1994. Today she would be 29, if she is still alive, saved by… >> Read More